- Key Guidelines & Documents?
- "They're not about dying and giving up": Here's how the Irish public misunderstands hospices;
- A valuable new framework for palliative care services in Ireland;
The time surrounding diagnosis can be a difficult and emotional period. Prior to diagnosis, there can be a lot of frustration due to unexplainable symptoms.
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You may have gone to the doctors with something you think can be treated easily. Instead, a long agonising wait and a batch of tests confirm MS. You may also have done this all on your own and now are now wondering who to turn to for support. Discovering that you have MS can give rise to many feelings. Some people are shocked or angered, wondering how and why they are affected.
Some feel relieved that they know why they have been unwell and are able to start dealing with it. Some deny that they have MS and try to carry on as if nothing needs to be addressed. All these feelings are normal; it is part of coming to terms with the diagnosis. Go with the feelings and take your time to let your diagnosis settle in your head.
Policy analysis: palliative care in Ireland.
However, many of these feelings and reactions can be damaging in the long run so at some stage you may need to find a way to accept your MS and decide how you can manage it. This process may take weeks, months or for some, years.
Coming to terms with your MS can be helped by getting the right information and talking to your partner, family or friends. Some people seek help from professional organisations like MS Ireland, rely on their healthcare team or seek help through counselling. People will react differently to the diagnosis; some may wish to find out everything about the condition and talk about it straight away. Patients, carers, advocacy organisations, managers, academics, health and social care professionals have worked together to produce the document, which describes best practice and communicates a compelling and inspiring vision of care.
Palliative and End-Of-Life Care: Policies, Guidelines & Tools
The purpose of the model of care is to provide a framework for the organisation and development of palliative care services in Ireland for people with life-limiting or life-threatening conditions. Implementation of the Model of Care has already started, but there remains much yet to do. The document is envisaged as being a "living" document and will be updated regularly to reflect emerging practice the developing evidence base.
Our country has a long and proud tradition of caring for those with life-limiting conditions, and the publication of the Report of the National Advisory Committee on Palliative Care was a seminal moment that marked government commitment to growing and sustaining services begun by communities and voluntary organisations.
Where to find Policies Guidelines & Tools
The programme aims to ensure that people with life-limiting conditions and their families can easily access a level of palliative care service that is appropriate to their needs regardless of care setting or diagnosis. Read more about the programme on the HSE website. Palliative care is an approach that improves the quality of life for people facing the problems associated with life-limiting illness and supports their families.
The palliative care approach focuses on the prevention and relief of suffering by means of assessing and treating pain and other physical, psychosocial or spiritual problems. For general press enquiries or if you want to speak to a trusted medical expert, contact Yvonne in our Communications Department.